"You've chosen lessons of pain"

I received a message with this video in it yesterday.  I have no idea who the person is who sent it... but, oddly.. this is one of my favorite songs and one I listen to every night.  Headphones on, dark room, and songs to obliterate the thoughts....

Anger? Surprise? Inspiration at its worst? WTH?

REPOST from my other blog(s):

Sometimes I get a spark of something that inspires me.  Such inspiration doesn't always present itself in the best way, though, but I usually try to go with it when it happens.  Such gems shouldn't be taken for granted but taken advantage of.  It really is that rare.

In the midst of fighting for every drop of energy that can be found wherever it is I can find it, a tiny burst will make its way into the day and nudge me.  Okay, I can certainly deal with that.  Wish there were MORE of it, but I'll take what I can get and go with it nonetheless.

The fuel for this little 'fire' isn't from a good source, definitely not a positive force, and most definitely not from a pleasant source.  Be that as it may, there it is... kind of like when your dog has an accident and you're left looking at it wondering to yourself what you did to deserve such a... 'gift'? lol  Okay, okay... enough with lame attempts at comedy.  Even so, the conversation with a friend of mine earlier today was what ignited this whatever-it-is and sent me on a journey to try and put my thoughts in order.  I found the results of that rather.. lacking.

All this blabbering, to be honest, is just my working through it all.  Not the conversation, because that was interesting and creatively invigorating.  But the chaos I'm dealing within the thought process at the moment is simply trying to pull together the shards of data that's left from past experience.  Anyone who understands this knows where I'm coming from.  G knows.  She gets it.  And, from what I read on her blog(s)... she's been able to run with it without tripping like a clown every step of the way that I've been.  Eh.  I'm still confident that this purging will eliminate the chaff and reveal the good stuff.  I'll be back to discuss that when it happens.

A Required Miracle.

Finding the strength to not crawl back in bed and disappear each day is becoming more difficult.  Finding anything at all to keep me going each day has become tiresome, monotonous, and a waste of time.  Yes, I realize this is depression talking.  Yes, I know my 'reality' is skewed by depression right now.  Yes, I know I have to not give up.  But is 'giving in' the same thing as 'giving up'?  I'm thinking... no, that it's something very different.  Aside from a miracle where I'm instantly transformed, where my LIFE is transformed, I'm carried with the current of 'what is' and left without the required miracle to turn my current life into something else other than what it is--a disaster.

Yesterday I was pretty shut-down, and today is no better.  Even as I sit here I want SO much to just crawl back in my bed, cover up, and completely disappear.  But disappearing comes with a hefty price, and that price is guilt.  Guilt because I feel like I'm not doing enough as it is and going back to bed, even if I am sick... just feels wrong.  Yeah, I realize that guilt shouldn't be a part of taking care of oneself, but it often is just the same.

I really can't stand feeling like this.  You've NO idea.

I want to feel good, energetic, hopeful, and I want to love my life again.  But how?  How in the world can I actually love THIS?

Crap.  Crap.  Crap.

*sigh*

OMG WW, WTF?

So if you saw my post in my "Boo's Juicy Bits" blog, you have a pretty good idea about where on the scale of frustration my meter's stuck at today.  Really.  As captivating as anxiety and stress is, I think I'll pass on that juicy bit today, thanks.  But dammit, the price is just too high, thanks to Weight Watchers and their constantly-changing diet plan--that used to NOT be like a 'diet' at all!  OMG, WW, WTF?!

I'm stepping past that for a moment in an attempt to get my bearings on things.  I'm working against prednisone weight gain here, and dammit if I don't have to PAY WW to be on a plan that makes little sense these days.  Crap, there I go again.  Enough of the WW talk---what do I do now?

Dang, but I'm tired of that question.

Okay, so is it not apparent that the question never changes from day to day?  Of course it is.  And every evening I go to bed convinced that tomorrow I'll approach things very differently, focus on something different in order to find solutions.  And then every morning I wake up to the same feeling of...

FKThisStupidDayandOMGEverythingSucksAndEveryoneSTFUAlreadyOMG!

Now that I have THAT out of my system...

All I want is to feel better, like a normal, healthy human being, to be able to do what I need to do, to work, to thrive, to survive.  Except, that last part is in opposition to all the other things, like working and junk.  I have to take these serious medications in order to survive, and yet I feel like I'm doing anything BUT that.  WTFAS??

Battling the prednisone bulge, water retention that I SWEAR could sink an intact Titanic, cravings that are absolutely out of this world, and the muscle weakness that absolutely refuses to abate; how's that for a fun time?

Over the last several days I'm dealing with the weakness that makes my arms and legs shake, that feels a whole lot like my blood sugar is crashing--though I know it's not.  My labs, my BG, was great last checked, so I doubt very seriously this shaking is from that.  So what then?  Myositis?  Okay, okay, okay... I did say I was going to focus on something else.  Guess I should do that--find a youtube video or something, anything, anything at all that will inspire me.  Hope.  Ideas.  Possibility.  Even if it's simply learning more about what I am dealing with, and also what other thing (Myositis) I could be dealing with....

Seriously.

WTH?

Today

Catchy title, huh?  I'm tired and a little low on the enthusiasm here, so my guess is that things aren't going to be too impressive as far as how I think, feel, or speak.  But it doesn't mean today isn't filled with possibility--because, as it turns out, it is.

The exercise bike is due to be delivered late this afternoon, so that's definitely a positive.  I also have to get blood drawn again and see my hepatologist about tapering the prednisone and increasing the Azathioprine dosages. Today has some promise to it, and I'll take that.  I'll take whatever good comes my way.  Still, I feel the depression trying to take hold, and I'm fairly certain it has a lot to do with the combination of prednisone and just the way things are at the moment in my life.

Today--I have to find a way to rise above it.  I just do.

Have to.