A Required Miracle.

Finding the strength to not crawl back in bed and disappear each day is becoming more difficult.  Finding anything at all to keep me going each day has become tiresome, monotonous, and a waste of time.  Yes, I realize this is depression talking.  Yes, I know my 'reality' is skewed by depression right now.  Yes, I know I have to not give up.  But is 'giving in' the same thing as 'giving up'?  I'm thinking... no, that it's something very different.  Aside from a miracle where I'm instantly transformed, where my LIFE is transformed, I'm carried with the current of 'what is' and left without the required miracle to turn my current life into something else other than what it is--a disaster.

Yesterday I was pretty shut-down, and today is no better.  Even as I sit here I want SO much to just crawl back in my bed, cover up, and completely disappear.  But disappearing comes with a hefty price, and that price is guilt.  Guilt because I feel like I'm not doing enough as it is and going back to bed, even if I am sick... just feels wrong.  Yeah, I realize that guilt shouldn't be a part of taking care of oneself, but it often is just the same.

I really can't stand feeling like this.  You've NO idea.

I want to feel good, energetic, hopeful, and I want to love my life again.  But how?  How in the world can I actually love THIS?

Crap.  Crap.  Crap.

*sigh*

OMG WW, WTF?

So if you saw my post in my "Boo's Juicy Bits" blog, you have a pretty good idea about where on the scale of frustration my meter's stuck at today.  Really.  As captivating as anxiety and stress is, I think I'll pass on that juicy bit today, thanks.  But dammit, the price is just too high, thanks to Weight Watchers and their constantly-changing diet plan--that used to NOT be like a 'diet' at all!  OMG, WW, WTF?!

I'm stepping past that for a moment in an attempt to get my bearings on things.  I'm working against prednisone weight gain here, and dammit if I don't have to PAY WW to be on a plan that makes little sense these days.  Crap, there I go again.  Enough of the WW talk---what do I do now?

Dang, but I'm tired of that question.

Okay, so is it not apparent that the question never changes from day to day?  Of course it is.  And every evening I go to bed convinced that tomorrow I'll approach things very differently, focus on something different in order to find solutions.  And then every morning I wake up to the same feeling of...

FKThisStupidDayandOMGEverythingSucksAndEveryoneSTFUAlreadyOMG!

Now that I have THAT out of my system...

All I want is to feel better, like a normal, healthy human being, to be able to do what I need to do, to work, to thrive, to survive.  Except, that last part is in opposition to all the other things, like working and junk.  I have to take these serious medications in order to survive, and yet I feel like I'm doing anything BUT that.  WTFAS??

Battling the prednisone bulge, water retention that I SWEAR could sink an intact Titanic, cravings that are absolutely out of this world, and the muscle weakness that absolutely refuses to abate; how's that for a fun time?

Over the last several days I'm dealing with the weakness that makes my arms and legs shake, that feels a whole lot like my blood sugar is crashing--though I know it's not.  My labs, my BG, was great last checked, so I doubt very seriously this shaking is from that.  So what then?  Myositis?  Okay, okay, okay... I did say I was going to focus on something else.  Guess I should do that--find a youtube video or something, anything, anything at all that will inspire me.  Hope.  Ideas.  Possibility.  Even if it's simply learning more about what I am dealing with, and also what other thing (Myositis) I could be dealing with....

Seriously.

WTH?

Today

Catchy title, huh?  I'm tired and a little low on the enthusiasm here, so my guess is that things aren't going to be too impressive as far as how I think, feel, or speak.  But it doesn't mean today isn't filled with possibility--because, as it turns out, it is.

The exercise bike is due to be delivered late this afternoon, so that's definitely a positive.  I also have to get blood drawn again and see my hepatologist about tapering the prednisone and increasing the Azathioprine dosages. Today has some promise to it, and I'll take that.  I'll take whatever good comes my way.  Still, I feel the depression trying to take hold, and I'm fairly certain it has a lot to do with the combination of prednisone and just the way things are at the moment in my life.

Today--I have to find a way to rise above it.  I just do.

Have to.