The O-M-G of L-I-F-E.

My brain isn't work very well today, as there seems to be a possible drug reaction of some kind going on.  Being ON prednisone, or coming OFF prednisone, or even the addition or accumulation of another medication in my system, something else entirely going on; no matter the cause, it MUST be addressed.  Soon.

After calling the after-hours number for my liver specialist I now have an early morning appointment tomorrow to see him to address whatever is going on.  Swelling in my face has progressed to my eyes, and with everything I am I know this isn't normal, not even for Prednisone, which is notorious for causing facial 'roundness' etc.  This is way more than that, causing headache, muscle stiffness, and a few other undesirable symptoms.  I have a very good specialist, btw, and I know he is doing everything he can to help me with the AIH and any drug side effects etc.  I totally trust him as a doctor.

Over the last few days I've had to go back to bed at least twice a day.  It's not like I don't resist the urge and try to keep busy, because I do put it off as long as possible.  Yet there ultimately comes a time when I can't fight the weakness etc. and have to lay down.  It sucks, it really really sucks, but when I reach that point there is absolutely no option.  I'm hoping my appointment tomorrow will shed some light and find a resolution to whatever is going on so I can begin to feel better again.

I would also like to not have the "OMG what now?" thing as a constant, daily occurrence.  I would like to not have my day sliced into tiny sections where I'm just trying to get from one little portion of my day to the next and wondering how I'll manage to keep going.  Relaxing isn't even relaxing anymore, because within a few moments of sitting or laying down I realize that there's nothing at all that is ever comfortable, and all becomes painful at some point.  I mean, WTF?

LIFE is a four-letter word.