Tuesday, June 21, 2016

It's My Blogger, I Can Whine If I Want To... Whine If I Want To....


You would whine too if it happened to youuuuuu! No, not really.  But it made for an intro that invoked a smile, even if a small one, right?  My busy week has left me wondering, unsure, and stuck in a health loop that I'm not sure will end easily.  Wow.  Like THAT doesn't sound familiar.

Life being what it is we just need to get things off our chest or deal with the consequences of, well, holding it all in until we lose it.  Right?  Right.  I suppose many people have their own way of dealing with or working through things life tosses their way, but for me.. I have many outlets.  Blogging, however is the one remaining on my list that I can actually use at the moment.  So be it.

I already talked about the elevated ferritin, so I'll leave that one be for the moment.  I saw an Endocrinologist yesterday who believes I have (((( wait for it  )))) Adrenal Fatigue caused by (((wait for it again! )))... long-term use of Prednisone.  I knoooooooooow!  *Putting on my best shocked face*  Basically what this means is that the prednisone put my adrenals to sleep and I have absolutely nothing to help me with ANY kind of stress.  I've been stressed for YEARS; Chronic, nearly 24/7 unbelievable stress, both emotional AND physical.  Then, I have to do a 12 day Pred Pac last year, then 3 months THIS year.  The thinking is that, because I went into Cushings Syndrome, my adrenals shut down.  And this is what happens when you develop Cushings.

I have almost every single symptom, and my Endo doc recognized what it is.  It can't be confirmed without blood work, and I got that today.  And tomorrow, because of the Pred, because of the Cushings, because of the possible adrenal fatigue.. I have to have glucose testing to see if my pancreas is damaged and I'm edging, or IN, the throes of diabetes.  My serum glucose is not showing overt diabetes, but that doesn't tell the entire story.  Type II diabetes is one of the more common side effects.  Nifty, huh?  *sigh*

The other appointment I had today was with my bone doc.  Got the MRI results back, and as suspected, I have a torn rotator cuff.  Surgery, because my arm is UNBELIEVABLY painful when I move, is the only option for me.  Day surgery, they'll repair the tear, file bone spurs, and send me home with pain meds and a few restrictions for a while.  There are two problems with proceeding right away with surgery is the fact that I have been on Prednisone and it was 'long-term.'  The other problem is the possible adrenal fatigue.  You can't add additional stress to the body when it basically lacks any defense.  Suppressed adrenals are VERY bad news, and in this case it would mean my body couldn't handle the physical stress of surgery, even minor surgery.  Getting upset at someone will shut you down completely when your adrenals are "asleep."

I can't go into all the details about adrenal fatigue because, literally, it would take a research paper to explain what it is in detail as well as the processes involved.  It's progressive if it isn't addressed and quickly.  People can be heading down that road for years and not even know it, and if you're on that road already... prednisone will push you right over the edge.  And it will.. WRECK. YOUR. LIFE.

So where I am right now in this is simple: Wait for blood test results to see IF what I'm dealing with actually IS adrenal fatigue, and go from there.

Not much else I can do.

Guess I'm done for now... arms too tired to type much longer.

Oh... hope you like the song I left for you guys....




Saturday, June 18, 2016

Raging Against....?

So I've managed to post in all my blogs today.  How about that?  I've been able to overcome the wreckage I am in the early morning and emerge only somewhat pieced together after about 3-4 cups of coffee.  Can this be any more mundane?  Geez.

Honestly, I would take mundane AND healthy and happy any day of the week.  Mundane and miserable just sucks.  It's not rocket science.

Somehow, some way I need to accommodate my own need within MY life.  This continues to be a major thorn in my side no matter what I do.  I'm surrounded by an epic view, a gorgeous view from the deck, the sunroom, and even the breakfast nook.  The front and back yards here is truly paradise.  What screws up this paradise is what happens within the confines of this house.  Here, where everything doesn't sync properly, where indifference lives, joy dies.


Friday, June 17, 2016

Been MANY years since I've listened to this....

MRI, Lab Results, and Fireflies!

The problem with my shoulder has gotten much worse and I'm pretty much unable to use my arm for little more than simple tasks... such as typing.  I was referred to bone doctor, who sent me for an MRI, which was yesterday.  An hour long MRI... did not sit well with my body at all.  I won't go into all of that now, but... now I wait to find out if it's a torn rotator cuff, which the bone doc thinks it is.  So much for that.

I also received a call from my PCD about some labs that were done about a week ago, and I'm once again being referred back to my hematologist.  Ugh.  The last time was about a year ago and was  for low ferritin (anemia).  I received iron infusions for that and was fine in that respect, and my ferritin levels were restored to normal.

THIS time, my ferritin is elevated.  Again, the last few tests it was right in the normal range where it should be.  I don't eat much red meat (not a big fan and prefer a plant-based diet), and any protein sources usually include chicken and fish mostly, and on occasion... red meat.  My multi-vitamin does NOT contain iron because I'm in pre/meno so well, to be blunt, I don't get any visits from Aunt Flow or Uncle TOM anymore, not in almost a year now.  No need for iron in vitamins when this occurs.

Anyway, so... I have to see the blood doctor to find out why.  Not sure if timing is the key here, or if this is just a really good indication that I'm NOT dealing with hemochromatosis, which is iron overload.  I don't believe for a second I have that.  But it still is almost always due to liver issues.  Ugh.. which most of you guys know I already have (Autoimmune Hepatitis, or AI).

Thankfully my ferritin level is only mildly raised... but I was told it's still needs attention because it means my body is absorbing more iron than it should.  I do have to say I find this odd since I really do eat very little meat.  No telling wth is causing this, but... another wait and see situation I guess.

On another note---FIREFLIES!

I've seen a few of these little guys flying about lately, but there were MUCH MORE yesterday.... and that's beyond awesome!  I DO NOT EVER, NOR DO I THINK IT'S OKAY to catch them in a jar!!  They're population is dwindling---a very sad fact---so in the very short season of their lives... let them live!  They have to have firefly nookie to maintain their population!  lol Well, it's true!

So my front and back yard is covered with them in the evenings... and, the big light at the end of the driveway is being turned off.  It's billed to us, so we can choose to have it on or not.  We're choosing NOT to have it on due to artificial light hurting the mating process of these amazing creatures.  We also don't over-mow the lawn so as to allow as much of the population to grow as possible.

I.  Absolutely.  LOVE.  Fireflies.


Thursday, June 16, 2016

Lucid Dream...

I had my first lucid dream.  At least I think it was my first.  You know how dreams are... some of them you just can't remember.  But this one was pretty clear, and it had the usual recurring theme as my dreams tend to have, which has been the way of my dreams nearly my entire life.  There are basically 3 recurring themes, but I won't get into those now.  But as dreams go, this one was quite different then all the others.

The dream:

I was home, in 'my' room doing nothing but sitting quietly on the bed and looking out the window.  Clouds outside were very low, dark, broiling... and they shifted into what I recognized as a tornado (common theme in my dreams and not in the least scary, btw).  I jumped up and ran into the living room looking to see what damage there might be, can I yelled out to T that there was a tornado.

I could see the deck out back was damaged, the railing torn, and some trees, etc. were damaged.  I then walked into the breakfast nook area, and this is when I noticed the furniture was different, the room was different, and outside the breakfast nook window was another room.. instead of the deck and gorgeous view.

Once I realized everything was different I stopped, turned a little bit and told T... "Oh.  Never mind.  It's is just a dream." I then just looked around quickly, amused that I was dreaming.. then woke.

Weird.

And I don't mind weird at all, but... I felt in my dream, as I do after waking from an interesting or otherwise really good dream, rather.. disappointed.  Perhaps it was because I felt as if I had control of things in the dream, and much less so than in real life.

Whatever caused this lucid dream--I hope it happens again, because... I rather liked it.  Honestly, I wish I felt in real life the way I do in my dreams.  Why?  Because it's more like 'living.'


"You've chosen lessons of pain"



I received a message with this video in it yesterday.  I have no idea who the person is who sent it... but, oddly.. this is one of my favorite songs and one I listen to every night.  Headphones on, dark room, and songs to obliterate the thoughts....


Wednesday, June 15, 2016

When Will I Be Heard. Actually Heard?

Seems a common theme in my life is that I'm often surrounded by people who tune me out.  The exception to this are my sons.  But outside of my sons... I see the world, for the most part, as a very tuned-out and self-interested place to live.  It's just the way it is and is evident as everyone I see has their heads buried in their cell phones if anyone at anytime takes even one breath.  I mean, are people that scared of being alone with their thoughts?  Does the modern world discard anything that doesn't promote self-interest?  I've no idea, but I do know it's not a great place to live most of the time.

No one promised anyone a large audience in which to vent their grievances.  But for the sake of humanity people really should try stepping outside of their own personal lives and address the world at large that exists beyond those few inches outside of their skin.  It's not painful, you know, taking a moment to BE humane.

I see humans but no humanity.   I don't remember who said this or where I may have read it, but I've never forgotten it.  And I'm not perfect---and neither is anyone else.  When people forget this incredibly important fact their humanity slips into a state of coma.  It's been my experience that once you slip into that dark place it takes some work to extract yourself from its grip.  And what a grip it can have too.  Luckily, I've been rather an emotional person most of my life and take on way too much of what others feel in any given circumstance.  <--Don't confuse that with a sense of 'better than thou."  It's anything but.

As I work my way through posting in all of my blogs here I find that the fatigue, the utter 'dullness' of my day and life overall.. doesn't budge one single bit.  Used to be I could work through issues by writing about them, but it hasn't been much help lately.

I'm tired.... hurting.  I'm really just spent.  I may not get to the other blogs today....