PART I: Malignant Narcissists, Revisited.

This is part one of two.  Part two will be done and uploaded tomorrow....

Thanksgiving Eve...

Well, anyway.....

Too soon?

Naaaaaahhh..... not for me.

Not feeling it....

I've always liked decorating early for Christmas.  Dragging everything out of storage, opening boxes and bags, and decorating... takes a minute, so the idea of putting everything up for a couple of weeks after all that works just doesn't make any sense to me.  Plus, my inner child is alive and well and always excited about Christmas, decorating, hot chocolate with marshmallows, Christmas cartoons and movies and every single bit of tradition out there.  I'm all in for Christmas...usually.

The last few years, however, the excitement has dimmed to a dull hue of red and green, to be honest.  I pretty much know the 'why' of this, but I've struggled over the past 6-7 years or so to repair whatever is sucking the joy out of the holidays and restore it to it's former, magical splendor.  If only....

It's not enough to know what's wrong.  Everything I long for when the nostalgia takes hold are those things that are just out of my reach. My attempts to re-create what's lost have failed, and I'm finding myself depressed more and more each year by the holidays.  While this depression doesn't completely isolate itself to Christmas only, that's the one that is the most difficult to navigate.

I really just hate this.

What 'haven't' I tried to breathe life back into the holidays?

This house is decked out big time, and... I'm just not feeling it.  I walk through the house, and I really love what I see.  But something vital is missing, and it's been fading away for years.  Yeah, yeah, I know this sounds like such a downer, but for me it really is in so many ways.

When all the reaching for better, happier, more joyful falls to the wayside.. so do I.  Just a fact.  There isn't any real way for me to work through this by myself, because the problem isn't an unknown.  As weird as that sounds, it's true.  When you don't know what's wrong, your focus shifts to one of discovery.  But when you know what's wrong one of the first things that comes to mind, for me anyway, is "Okay.  Now what?"  And, unfortunately, that's where I'm stuck.

Tomorrow is another day, and I'm planning on digging into my web sites if I have enough energy to do so.  Maybe it will distract me, though I realize it won't solve anything.  I have to do something to fight my way out of this.

For the sake of this particular blog and it's 'intended' theme/focus, I will say that I'm doing well on my diet in the sense that I'm not having any urges to cheat etc., and in fact have been eating under my points (which can backfire on me later and likely will).

Okay, so.. no, I'm not making much sense at the moment.  I'm tired, so so tired.  I didn't sleep well last night which makes this all so much more intense, and in the wrong way.  At the urge of a couple of you, I'm trying, and that's about all I can promise I'll do right now.

Tomorrow is another day.  But today... I'm just not feeling it.

Post-Surgery Pain, and The Cruel Act of Indifference.

This is difficult.  Post-surgery for frozen shoulder and minor rotator cuff tear and I'm feeling like hell.    It will take a long time to recover and regain full use of my left arm, and dammit but it hurts to type.  I almost decided to do an audio blog but not enough privacy the last couple of days to do that.  So I'll make this just a quick check-in.

I'm not sleeping, mostly getting up several times a night to move my arm, elbow... to alleviate what pain I can.  This is often a tearful process.  I don't know when the big crash will come, but it will.  A human being simply can't withstand not sleeping like this.  On Wednesday, then on Saturday... things will change and hopefully for the better.

Sleeping on my side after this kind of surgery isn't the best idea, and it creates a world of pain, swelling to an unhealthy level in my arm.  This became the catalyst for ordering one of those Tempur Pedic beds.  NOT the cheapest thing in the world, but a very necessary one at this point as the healing process is going to take a long time.  So be it.  It's adjustable so I can support the back of my legs and have the back of the bed upright to manage sleeping without being on my side.  Saturday, a Laz-boy chair will arrive, and mostly for the same purpose.  As it stands now my options are to sit straight/upright or lay in a flat bed.  Both options mean pain and swelling.  But hey, those recliners are awesome and it's not like it won't be fully enjoyed way beyond the shoulder healing.

I suppose at this point I'm just rambling, but everything I am is consumed with the pain and trying to work past it without taking the powerful pain killers I was given.  The side effects sucks, and that means I'm making damn sure to take them sparingly.  But either way, my point is basically that I'll be dealing with this for a while and probably not making a lot of sense when I post.

There most likely won't be daily entries for a while, but I will try my best.

Post-surgery with all it's unbelievable pain has opened up a part of me that I really would rather leave closed, shut away, and ignored.  That echo chamber of the past and present merging in unsettling ways rumbles below the surface, always, making itself known at the darkest of hours and experiences.  I find myself unsettled---not just my circumstances or thoughts.  In the wee hours, especially when awakened by the almost ceaseless pain, true anxiety sets in and grips me.  Most of the time I can overcome it and get past it's frightening messages.  But then there are times when it takes hold and I find myself incredibly vulnerable and needing a strong, positive presence to jerk me back into a brighter reality.  Things is... I have no such strong, positive presence.  Yeah.
What to do with that.

As you guys know, indifference has been my companion.  T's indifference rears it's true self amidst the pain that really feels as if it's going to rip me apart.  You see, the first part of knowing how to squash pain naturally is to avoid stress at all costs, because stress destroy's the body's own ability to send much-needed pain killers to it's needed location.  Over time, especially in the presence of AI disease and fibromyalgia.... the breakdown of this mechanism is swift and brutal, leaving me without any natural defenses.  This sucks.

I've been brought to tears by the sheer intensity and duration of this pain, and the fibro is in a massive flare-up now, adding wide-spread, diffuse pain to that of the post-surgical.  While it's nothing to brag about, I will admit that I've been brought to my knees by the force of it all, crying so hard I felt as if my head would explode.  Late at night, when it's at its worst T will simply get up, stand there... and say nothing, do nothing, offer nothing.  I've had to tell him it's best he stay away rather than bring that indifference to the already miserable situation.

It is times like this that I long for "home," whatever and wherever that is.  No one to reach out to, to plead to, or talk to.  Not a parent, sibling, or best friend.  No one.  It's only when either by exhaustion or prescription intervention does the pain lessen a little, just enough for my mind to bring forth an image of a healthy, happy, joyful, fulfilled and pain-free me.  When I fall asleep... it sometimes carries me into dreaming, those thoughts.

My arm is in a lot of pain at the moment, so I'm going to sign off.  I hope that each day with willpower and physical therapy.. and even the weaker moments when I allow myself the prescription help to relieve the pain... maybe I'll get stronger, better.  I have 3 days of PT this coming week... and I pray it's the start to real recovery.

I need this pain to stop.  I really do.

Hopefully I can post tomorrow.

PS... I was amazed at how many page views Where Fireflies Dream received.... gave me a smile.

It's About Time.

When I first began blogging it was for one specific reason--venting.  I needed a place where I could get things off my chest that were bothering me so I could get on with life without cumbersome emotions or baggage.  I had ONE blog at that time.  When things got tough, and they often were, I would visit my blog and unload to my heart's content, not giving a single iota to being politically correct or holding back out of some delusion that I somehow had to be 'polite' here.  The venting would ensue, fall upon the screen, and I would be left to bask in the aftermath of some seriously epic purging of thoughts, feelings, and more.  In the end I would usually go back and delete the long-winded and emotionally-charged entries, knowing I could do so now that some time had past.  That blog still exists and I still post in it as often as possible, and I named it "All Things Ephemeral" for a reason, even if that reason no longer exists.  Let me explain....

A few years ago I made the decision to stop deleting the entries.  Being honest with myself I realized that I was deleting so as not to 'hurt feelings' of those I vented about.  No matter that I left off names and details that would give much away to the wrong set of eyes reading, I decided it was somehow 'impolite' to share even my feelings and experiences.  Boy, was that ever stupid.  I'm glad I came to my senses and stopped editing the content over some perceived butthurt it may cause someone else.  But, did I really stop editing my own entries after all?  Well, today I figured it was something worth investigating.

I often come here and stare at the blank screen where bits of my life would fall and wonder... "How can I actually talk about this?"  I know as I write just how much I'm holding back, even when I don't WANT to.  Still, the struggle to set myself free remains just that--a struggle, even today.  Even when I know the healthiest thing I can do for myself is write about it, get it out of my system, it's remains incredibly difficult just the same.

What I want very much to do right now is to take the first step in 'going there,' to talk openly instead of using a string of allusions to piece together a story that, when all is said and done, remains unclear and ill-explained because of that fear below the surface of truth.

A Bold First Step

My next blog entry will be in This Free Spirit, and I tell you this because it will ultimately be the first blog entry in many years where I hold little if nothing back.  With failing health I need all the help I can get to break the bonds of emotional servitude, and the first step is to open myself completely to the idea of 'almost' full disclosure.

Wish me luck....

The Times I Want to RANT--And Why I Don't.

Okay, so there've been entries that appear as if I'm ranting.  But honestly, I've held back BIG TIME.  There's still a little unease with just going off here like I want to from time to time.  There's still a part of me that doesn't fully trust the internet (smart) and even blogging.  Pouring one's heart out for the world to see isn't easy for all of us, and unless you're really wanting the attention it will be hard.

I have to handle myself with kid gloves sometimes.

All that being said, I still strive to share from the deepest confines of my soul when I can.  One day I will be successful in letting it all hang out and just letting the fur fly.  Till then I'll be saying what I can, when I can.

I'll get there.  I know I will.  I may, in fact, decide to set a date to simply dive right in.  And you guys.. will be the first to know.

But Haven't I Spewed Enough Crap For One Day?

But there's never enough spewing of crap!  Well, I actually have spewed enough crap on my other blogs, but that doesn't mean I'm done.  With so much happening in my life right now, so much that interferes with my life and leaving me with no QUALITY of life... oh yes, there's much crap to spew. I assure you.

In so many ways I have the best seat in the house to the most ridiculous display of 'man' spewings.  Now I will say this about T---he's a good guy, a funny guy, and often very sweet. However, quite honestly he's still in the 'typical man' club just like most others.  Doesn't make him bad--it just makes him difficult to deal with, to reason with.

I'm just too tired for 'typical.'

So as I sit up front and center to one of the biggest shit-shows life has to offer I get the residual sound effects from the man camp.  How is it I get through a day is often beyond me.  I have way too much to deal with as it is, my health is shot to hell.. and I'm told, of all things, to "Avoid stress."  Uh huh.  And exactly how am I supposed to do that?  I'll wait.....

Incredibly, there isn't anything I can do to stop the stress as what I face here at home on a daily basis isn't something I can walk away from or avoid... or even ignore.  What a clever assessment on how things should be handled, right?  Just simply avoid stress.  Gosh.  Why didn't I think of that before?  *sigh*

With writing in ALL of my blogs today I'm finding myself understandably tired and drained.  That's not entirely bad, though, as once I've emptied myself of all that's bugging me I can proceed with putting at least mental/spiritual effort into filling that emptiness with something better, whatever that may be.

For the moment, and ONLY for the moment it's just me and my dog here at the house and all is quiet, calm.  I'd be smart to take advantage of that, so... I'm signing off for now and will try again tomorrow to talk about more substantive issues.  *snort*  yeah, I'm laughing too.

Till tomorrow....

It's My Blogger, I Can Whine If I Want To... Whine If I Want To....

You would whine too if it happened to youuuuuu! No, not really.  But it made for an intro that invoked a smile, even if a small one, right?  My busy week has left me wondering, unsure, and stuck in a health loop that I'm not sure will end easily.  Wow.  Like THAT doesn't sound familiar.

Life being what it is we just need to get things off our chest or deal with the consequences of, well, holding it all in until we lose it.  Right?  Right.  I suppose many people have their own way of dealing with or working through things life tosses their way, but for me.. I have many outlets.  Blogging, however is the one remaining on my list that I can actually use at the moment.  So be it.

I already talked about the elevated ferritin, so I'll leave that one be for the moment.  I saw an Endocrinologist yesterday who believes I have (((( wait for it  )))) Adrenal Fatigue caused by (((wait for it again! )))... long-term use of Prednisone.  I knoooooooooow!  *Putting on my best shocked face*  Basically what this means is that the prednisone put my adrenals to sleep and I have absolutely nothing to help me with ANY kind of stress.  I've been stressed for YEARS; Chronic, nearly 24/7 unbelievable stress, both emotional AND physical.  Then, I have to do a 12 day Pred Pac last year, then 3 months THIS year.  The thinking is that, because I went into Cushings Syndrome, my adrenals shut down.  And this is what happens when you develop Cushings.

I have almost every single symptom, and my Endo doc recognized what it is.  It can't be confirmed without blood work, and I got that today.  And tomorrow, because of the Pred, because of the Cushings, because of the possible adrenal fatigue.. I have to have glucose testing to see if my pancreas is damaged and I'm edging, or IN, the throes of diabetes.  My serum glucose is not showing overt diabetes, but that doesn't tell the entire story.  Type II diabetes is one of the more common side effects.  Nifty, huh?  *sigh*

The other appointment I had today was with my bone doc.  Got the MRI results back, and as suspected, I have a torn rotator cuff.  Surgery, because my arm is UNBELIEVABLY painful when I move, is the only option for me.  Day surgery, they'll repair the tear, file bone spurs, and send me home with pain meds and a few restrictions for a while.  There are two problems with proceeding right away with surgery is the fact that I have been on Prednisone and it was 'long-term.'  The other problem is the possible adrenal fatigue.  You can't add additional stress to the body when it basically lacks any defense.  Suppressed adrenals are VERY bad news, and in this case it would mean my body couldn't handle the physical stress of surgery, even minor surgery.  Getting upset at someone will shut you down completely when your adrenals are "asleep."

I can't go into all the details about adrenal fatigue because, literally, it would take a research paper to explain what it is in detail as well as the processes involved.  It's progressive if it isn't addressed and quickly.  People can be heading down that road for years and not even know it, and if you're on that road already... prednisone will push you right over the edge.  And it will.. WRECK. YOUR. LIFE.

So where I am right now in this is simple: Wait for blood test results to see IF what I'm dealing with actually IS adrenal fatigue, and go from there.

Not much else I can do.

Guess I'm done for now... arms too tired to type much longer.

Oh... hope you like the song I left for you guys....

Raging Against....?

So I've managed to post in all my blogs today.  How about that?  I've been able to overcome the wreckage I am in the early morning and emerge only somewhat pieced together after about 3-4 cups of coffee.  Can this be any more mundane?  Geez.

Honestly, I would take mundane AND healthy and happy any day of the week.  Mundane and miserable just sucks.  It's not rocket science.

Somehow, some way I need to accommodate my own need within MY life.  This continues to be a major thorn in my side no matter what I do.  I'm surrounded by an epic view, a gorgeous view from the deck, the sunroom, and even the breakfast nook.  The front and back yards here is truly paradise.  What screws up this paradise is what happens within the confines of this house.  Here, where everything doesn't sync properly, where indifference lives, joy dies.