What if....

What if I said I wanted to pour my heart and soul out to you?  What if I could, even for a very short time, find such trust that nothing, absolutely nothing would be off limits in what I could share?  What if I didn't hold back, didn't keep my entire heart's secrets walled off from the rest of me, and expose every one in such detail that it took your breath away?  What if... I told you a secret you'd never forget, no matter how hard you tried?

What if you could be surprised at the stories I hold inside?

What if I told you that I've never trusted a soul 100% in my life but that I'm willing to now?

What would you ask me if you could ask me anything?

What if I told you that you'd be surprised at who I'm talking to, and would you want it to be you?

Post-Surgery Pain, and The Cruel Act of Indifference.

This is difficult.  Post-surgery for frozen shoulder and minor rotator cuff tear and I'm feeling like hell.    It will take a long time to recover and regain full use of my left arm, and dammit but it hurts to type.  I almost decided to do an audio blog but not enough privacy the last couple of days to do that.  So I'll make this just a quick check-in.

I'm not sleeping, mostly getting up several times a night to move my arm, elbow... to alleviate what pain I can.  This is often a tearful process.  I don't know when the big crash will come, but it will.  A human being simply can't withstand not sleeping like this.  On Wednesday, then on Saturday... things will change and hopefully for the better.

Sleeping on my side after this kind of surgery isn't the best idea, and it creates a world of pain, swelling to an unhealthy level in my arm.  This became the catalyst for ordering one of those Tempur Pedic beds.  NOT the cheapest thing in the world, but a very necessary one at this point as the healing process is going to take a long time.  So be it.  It's adjustable so I can support the back of my legs and have the back of the bed upright to manage sleeping without being on my side.  Saturday, a Laz-boy chair will arrive, and mostly for the same purpose.  As it stands now my options are to sit straight/upright or lay in a flat bed.  Both options mean pain and swelling.  But hey, those recliners are awesome and it's not like it won't be fully enjoyed way beyond the shoulder healing.

I suppose at this point I'm just rambling, but everything I am is consumed with the pain and trying to work past it without taking the powerful pain killers I was given.  The side effects sucks, and that means I'm making damn sure to take them sparingly.  But either way, my point is basically that I'll be dealing with this for a while and probably not making a lot of sense when I post.

There most likely won't be daily entries for a while, but I will try my best.

Post-surgery with all it's unbelievable pain has opened up a part of me that I really would rather leave closed, shut away, and ignored.  That echo chamber of the past and present merging in unsettling ways rumbles below the surface, always, making itself known at the darkest of hours and experiences.  I find myself unsettled---not just my circumstances or thoughts.  In the wee hours, especially when awakened by the almost ceaseless pain, true anxiety sets in and grips me.  Most of the time I can overcome it and get past it's frightening messages.  But then there are times when it takes hold and I find myself incredibly vulnerable and needing a strong, positive presence to jerk me back into a brighter reality.  Things is... I have no such strong, positive presence.  Yeah.
What to do with that.

As you guys know, indifference has been my companion.  T's indifference rears it's true self amidst the pain that really feels as if it's going to rip me apart.  You see, the first part of knowing how to squash pain naturally is to avoid stress at all costs, because stress destroy's the body's own ability to send much-needed pain killers to it's needed location.  Over time, especially in the presence of AI disease and fibromyalgia.... the breakdown of this mechanism is swift and brutal, leaving me without any natural defenses.  This sucks.

I've been brought to tears by the sheer intensity and duration of this pain, and the fibro is in a massive flare-up now, adding wide-spread, diffuse pain to that of the post-surgical.  While it's nothing to brag about, I will admit that I've been brought to my knees by the force of it all, crying so hard I felt as if my head would explode.  Late at night, when it's at its worst T will simply get up, stand there... and say nothing, do nothing, offer nothing.  I've had to tell him it's best he stay away rather than bring that indifference to the already miserable situation.

It is times like this that I long for "home," whatever and wherever that is.  No one to reach out to, to plead to, or talk to.  Not a parent, sibling, or best friend.  No one.  It's only when either by exhaustion or prescription intervention does the pain lessen a little, just enough for my mind to bring forth an image of a healthy, happy, joyful, fulfilled and pain-free me.  When I fall asleep... it sometimes carries me into dreaming, those thoughts.

My arm is in a lot of pain at the moment, so I'm going to sign off.  I hope that each day with willpower and physical therapy.. and even the weaker moments when I allow myself the prescription help to relieve the pain... maybe I'll get stronger, better.  I have 3 days of PT this coming week... and I pray it's the start to real recovery.

I need this pain to stop.  I really do.

Hopefully I can post tomorrow.

PS... I was amazed at how many page views Where Fireflies Dream received.... gave me a smile.

It's About Time.

When I first began blogging it was for one specific reason--venting.  I needed a place where I could get things off my chest that were bothering me so I could get on with life without cumbersome emotions or baggage.  I had ONE blog at that time.  When things got tough, and they often were, I would visit my blog and unload to my heart's content, not giving a single iota to being politically correct or holding back out of some delusion that I somehow had to be 'polite' here.  The venting would ensue, fall upon the screen, and I would be left to bask in the aftermath of some seriously epic purging of thoughts, feelings, and more.  In the end I would usually go back and delete the long-winded and emotionally-charged entries, knowing I could do so now that some time had past.  That blog still exists and I still post in it as often as possible, and I named it "All Things Ephemeral" for a reason, even if that reason no longer exists.  Let me explain....

A few years ago I made the decision to stop deleting the entries.  Being honest with myself I realized that I was deleting so as not to 'hurt feelings' of those I vented about.  No matter that I left off names and details that would give much away to the wrong set of eyes reading, I decided it was somehow 'impolite' to share even my feelings and experiences.  Boy, was that ever stupid.  I'm glad I came to my senses and stopped editing the content over some perceived butthurt it may cause someone else.  But, did I really stop editing my own entries after all?  Well, today I figured it was something worth investigating.

I often come here and stare at the blank screen where bits of my life would fall and wonder... "How can I actually talk about this?"  I know as I write just how much I'm holding back, even when I don't WANT to.  Still, the struggle to set myself free remains just that--a struggle, even today.  Even when I know the healthiest thing I can do for myself is write about it, get it out of my system, it's remains incredibly difficult just the same.

What I want very much to do right now is to take the first step in 'going there,' to talk openly instead of using a string of allusions to piece together a story that, when all is said and done, remains unclear and ill-explained because of that fear below the surface of truth.

A Bold First Step

My next blog entry will be in This Free Spirit, and I tell you this because it will ultimately be the first blog entry in many years where I hold little if nothing back.  With failing health I need all the help I can get to break the bonds of emotional servitude, and the first step is to open myself completely to the idea of 'almost' full disclosure.

Wish me luck....

The Times I Want to RANT--And Why I Don't.

Okay, so there've been entries that appear as if I'm ranting.  But honestly, I've held back BIG TIME.  There's still a little unease with just going off here like I want to from time to time.  There's still a part of me that doesn't fully trust the internet (smart) and even blogging.  Pouring one's heart out for the world to see isn't easy for all of us, and unless you're really wanting the attention it will be hard.

I have to handle myself with kid gloves sometimes.

All that being said, I still strive to share from the deepest confines of my soul when I can.  One day I will be successful in letting it all hang out and just letting the fur fly.  Till then I'll be saying what I can, when I can.

I'll get there.  I know I will.  I may, in fact, decide to set a date to simply dive right in.  And you guys.. will be the first to know.

July 4th weekend & the most beautiful voice carrying our national anthem at the Lincoln Memoriali...

This brought tears to my eyes--and gave me goosebumps.  The most beautiful version of this I have ever heard, and it was spontaneous.  God bless this beautiful country---God bless the USA. <3

Well. Damn.

If there's anything that I'm NOT afraid of it's doctors and needles.  I don't mind a shot when necessary, and I don't mind blood work or IVs when needed.  However, one thing I discovered today is: I rather NOT okay with giving injections to myself.  And that, unfortunately, is what it's come to... at least right now.

So I saw my Endocrinologist today regarding my lab results for Cushings, Adrenal Fatigue, and... blood sugar issues.  The latter was a big concern because I ended up with Cushing's Syndrome while taking Prednisone, long-term (approximately 3 months).  My allergist stated flat-out that I would be lucky NOT to end up with Type II Diabetes due to my reaction to the Prednisone.  Lovely.  Especially given that my mom and oldest sister both had it (both deceased).

I have other health issues so the drug my doctor wanted me on can't be an option right now.  Lucky me, instead I get an injection... a treatment for Diabetes that's used for PRE-Diabetes/Insulin Resistance--which is where I'm at right now.  Damn.

Serum fasting glucose, Glucose Tolerance Test, AND serum Insulin were taken to assess IF I were in trouble and how badly.  My fasting INSULIN was double what it should have been, my fasting glucose was 111, and at one point... my fasting glucose (in the past few months) was 123.  I had NO idea about that 123 FG.  So here I am having to give myself a lovely injection in my abdomen (skin) once a week for 2 weeks to see if I need to continue that or not, long term, OR... if she's going to put me on another protocol.

The GOOD news is, at least on this one test, my adrenals are perfectly fine and right in the middle of the normal range.  She doesn't completely trust it so wants to test them again in 2 weeks to see where it is.  I also have to have my A1C tested again in a couple of weeks.

It's begun.

I'm NOT looking forward to giving myself an injection, even IF it's an automatic device and pre-loaded.  Just YUCK!!

I have hypOglycemia symptoms and have had those in the past.  I won't explain the process here of what happens BEFORE a person ends up diabetic, etc., because it's more time and energy than I have right now.  But hypOglycemia symptoms suck pretty bad.  Weakness, shaking, fatigue, cold sweats, headaches, etc.  What fun.  However, we're not exactly sure what's causing the chronic pain.  Endo says she also wonders about a myositis situation given the elevated Aldolase on a couple of occasions.  It's not elevated NOW, but I also was on prednisone and Imuran for 3 months, so that took care of any inflammation there might have been in my muscles.. causing muscle breakdown.

I don't know how anyone will ever be able to nail down the cause of the muscle pain after my having been on corticosteroids.  I just don't know.

Well, the pain is pretty severe so am going to sign off for now.  Wish me luck in the morning when I have to give myself my first injection.

But Haven't I Spewed Enough Crap For One Day?

But there's never enough spewing of crap!  Well, I actually have spewed enough crap on my other blogs, but that doesn't mean I'm done.  With so much happening in my life right now, so much that interferes with my life and leaving me with no QUALITY of life... oh yes, there's much crap to spew. I assure you.

In so many ways I have the best seat in the house to the most ridiculous display of 'man' spewings.  Now I will say this about T---he's a good guy, a funny guy, and often very sweet. However, quite honestly he's still in the 'typical man' club just like most others.  Doesn't make him bad--it just makes him difficult to deal with, to reason with.

I'm just too tired for 'typical.'

So as I sit up front and center to one of the biggest shit-shows life has to offer I get the residual sound effects from the man camp.  How is it I get through a day is often beyond me.  I have way too much to deal with as it is, my health is shot to hell.. and I'm told, of all things, to "Avoid stress."  Uh huh.  And exactly how am I supposed to do that?  I'll wait.....

Incredibly, there isn't anything I can do to stop the stress as what I face here at home on a daily basis isn't something I can walk away from or avoid... or even ignore.  What a clever assessment on how things should be handled, right?  Just simply avoid stress.  Gosh.  Why didn't I think of that before?  *sigh*

With writing in ALL of my blogs today I'm finding myself understandably tired and drained.  That's not entirely bad, though, as once I've emptied myself of all that's bugging me I can proceed with putting at least mental/spiritual effort into filling that emptiness with something better, whatever that may be.

For the moment, and ONLY for the moment it's just me and my dog here at the house and all is quiet, calm.  I'd be smart to take advantage of that, so... I'm signing off for now and will try again tomorrow to talk about more substantive issues.  *snort*  yeah, I'm laughing too.

Till tomorrow....