Thursday, March 10, 2016
The Real Donald Trump
Dan Scavino said today that it's a shame the media will never talk about or show the kind heart that Donald Trump has. Those of us who grew up seeing the interviews from as far back as the 80's know he wasn't hated but rather watched in awe. How could a super wealthy guy could be so... down to earth? Well, he just is, and he always has been. While the media and establishment try their best to bring him down ...it just doesn't work, and it won't because most of us who support him already know of him. We've paid attention because, well, how can you not? So when you hear the slander and lies, and they are lies, remember this: A lie will travel the world and back while the truth is still putting on its shoes.
Wednesday, March 9, 2016
The Status Quo.
It's been a week, and this entry is going to be brief and probably more than a little boring. My goals, as I've spoken about often, are to purge thoughts, etc. in my blogs. As of today my thoughts are fairly off, meaning I'm having trouble really understanding what it is I need to talk about. This dullness becomes the color of all of my life these days as the prednisone withdrawal wreaks absolute havoc on my body; This is the worst thing I've gone through to-date.
While I know that withdrawal will bring miserable consequences, ones that often can't be avoided, the possibility that there is something else going on is [possibly] evident in what I'm experiencing. Could it be that the withdrawal symptoms are simply symptoms of some other unknown problem yet to be discovered? My liver Dr. seems to think so. But damn. I can't deal with this much longer. Someone needs to get on finding out what the hell is kicking my ass SO badly that I have no quality of life anymore.
As I type this entry I have to lean my forearms on the laptop, putting my arms at my sides often as well because I simply cannot hold them there for long. This weakness is hardly tolerable on any level.
I'm simply too weak to keep typing... just wanted to check-in...
This is really getting ridiculous. And as for any support from T... nope. I have to accept that I'm in this alone. So be it....
While I know that withdrawal will bring miserable consequences, ones that often can't be avoided, the possibility that there is something else going on is [possibly] evident in what I'm experiencing. Could it be that the withdrawal symptoms are simply symptoms of some other unknown problem yet to be discovered? My liver Dr. seems to think so. But damn. I can't deal with this much longer. Someone needs to get on finding out what the hell is kicking my ass SO badly that I have no quality of life anymore.
As I type this entry I have to lean my forearms on the laptop, putting my arms at my sides often as well because I simply cannot hold them there for long. This weakness is hardly tolerable on any level.
I'm simply too weak to keep typing... just wanted to check-in...
This is really getting ridiculous. And as for any support from T... nope. I have to accept that I'm in this alone. So be it....
Labels:
AIH,
autoimmune hepatitis,
blog,
body,
chronic illness,
chronic pain,
fatigue,
hope,
life,
living,
lost,
reality
Wednesday, March 2, 2016
Weak...
It's hard to post entries these days with the growing weakness in my limbs. Even holding steady with Prednisone dosage the weakness just seems to take over everything, seemingly unstoppable. I've made major adjustments in my diet, opting for extremely bland food and following a diet that's supposed to help a sensitive digestive system. I've also stopped one of my medications for reflux (I'm on 2) because it can cause GI issues. So far I've not seen a lot of improvement, but 'some' improvement is definitely better than nothing in that respect. Still, the weakness is really taking over things, and I have to say.. I'm really sick of it all.
I dread waking up in the morning. Sitting up on the side of the bed takes great effort, and lifting my arms to dress, etc. is becoming something I have to 'will' myself through. I long for the days when I could bound out of bed, ready for the world and whatever the day holds. This weak and tired person I've become I don't recognize, and yet here I am literally willing myself through what few tasks I'm able to do. When will these doctors get to the bottom of everything?
Yes, the Prednisone and Aza (Azathioprine/Imuran) have helped SO many symptoms, brought my liver enzymes back into the normal range, but symptoms that persist have obliterated my quality of life almost down to zero. What's next in the quest for 'healthy'? I'm doing everything within my power to propel myself towards feeling better, healthy, vibrant--but my body isn't responding to anything and simply grows weaker by the day. I've no idea what to make of it all.
The liver specialist I'm seeing remarked early on that he thought there was something else going on besides the AIH, remarking on elevated aldolase, which remained elevated even while on Prednisone. My aldolase levels only returned to normal with the addition of Aza... not sure what that's about, but I know testing for myositis at this point is futile due to my being on prednisone and Aza--the two main drugs to treat myositis. *sigh*
Well, my arms have completely given out, the muscles hurting badly as I type....
I'm out for now...
I dread waking up in the morning. Sitting up on the side of the bed takes great effort, and lifting my arms to dress, etc. is becoming something I have to 'will' myself through. I long for the days when I could bound out of bed, ready for the world and whatever the day holds. This weak and tired person I've become I don't recognize, and yet here I am literally willing myself through what few tasks I'm able to do. When will these doctors get to the bottom of everything?
Yes, the Prednisone and Aza (Azathioprine/Imuran) have helped SO many symptoms, brought my liver enzymes back into the normal range, but symptoms that persist have obliterated my quality of life almost down to zero. What's next in the quest for 'healthy'? I'm doing everything within my power to propel myself towards feeling better, healthy, vibrant--but my body isn't responding to anything and simply grows weaker by the day. I've no idea what to make of it all.
The liver specialist I'm seeing remarked early on that he thought there was something else going on besides the AIH, remarking on elevated aldolase, which remained elevated even while on Prednisone. My aldolase levels only returned to normal with the addition of Aza... not sure what that's about, but I know testing for myositis at this point is futile due to my being on prednisone and Aza--the two main drugs to treat myositis. *sigh*
Well, my arms have completely given out, the muscles hurting badly as I type....
I'm out for now...
Labels:
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autoimmune hepatitis,
azathioprine,
blog,
body,
chronic illness,
chronic pain,
courage,
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life,
liver,
living,
self,
sick,
symptoms,
tired
Thursday, February 25, 2016
The Similarities of Day to Day Life.
Or shall we call it "A life of perpetual sameness"? Either way, I'm going to make damn sure I change this. I have to.
I've posted enough here for you guys to know where I am at the moment. Dealing with communication and respect issues from T, issues that make themselves known every day and every night without fail. You also know by now that my tolerance for this is extremely thin, verging on non-existent. Notwithstanding innocent goof and human blunders, somewhere in the chaos one has to actually SEE the damage being done. "I" see the damage because I'm a recipient of most of it, but T sits quietly on the river "Denial" and refuses to move. Ok. Whatever.
He doesn't like my bluntness and doesn't want me to say aloud the truth that threatens not only to completely destroy this relationship, but the truth that's destroying my peace of mind, health, and happiness. He's in blissful ignorance, so I don't have any choice other than to say exactly what's on my mind.
When I'm trying to open a discussion, when I need to point out behaviors in someone that TRULY need addressing, I use non-combative phrases. I speak of how I feel, what the harmful behavior is, but I don't point fingers, name-call, label, etc., because that approach causes damage as well. I know how to communicate, as long as people allow me to communicate.
Repeatedly disrespecting me is a huge deal and would be for pretty much anyone. Not allowing anyone to disrespect me was a lesson only recently learned, so I'm still a little awkward with it and finding my balance and strength when approaching the subject. I'm getting there. Now, in the process I've become fairly blunt when I've taken all I can, and all PC is out the window. I speak my mind now while doing my best to preserve the other person's (in this case T) self-esteem. I've no interest in becoming what I most despise so won't allow myself to go there.
T believes that when I point out what he does that hurts, offends, and disrespects me.. that it's a form of disrespect and that I shouldn't say anything at all. But I assure you, that approach NEVER works and is, in fact, quite harmful to relationships and the individuals. If I shove down my feelings, ignore the disrespect, and take the punches in silence... I will eventually resent that person, and that person right now is T. No matter how I try to explain this--he doesn't get it and shows no indication of trying to understand or stop the disrespectful behavior.
Again, as I've said many times before, I'm not trying to make T out as a bad guy or to demonize him. He's NOT a bad guy--he's just blind to the things he does and doesn't do that greatly and adversely affect me in so many ways. I hang in there for the obvious reasons, and I do so because I hold hope very close, hope that he'll see what he's doing so it can be stopped.
I may be a bit foolish for relying on hope this way given my past experiences and hope-filled failures. But there's no reason NOT to hope. In fact, hope is the great buffer of all things, isn't it? Life tends to slip apart when hope is lost.
Damage control: There's been a lot of this with most being unsuccessful. And I'm no stranger to damage control given past relationships that left me holding the weight of fixing everything. One person CANNOT fix a relationship, nor can one person break it. If a relationship is going bad, guaranteed there are TWO people at fault, even if it's the behavior of one and the acceptance of that behavior by the other. It takes two people to break a relationship and two to repair it; an absolute truth.
Sometimes there are victims, yes, but 'most' victims are willing. Meaning, when you have a way out of a bad situation and don't get on board with preparing things, and if you stay and suffer the damaging consequences.. then you've willingly participated in that damage.
As for me, I was a willing victim. I played the martyr in love more times than I like to admit. My role in a past relationship which did a LOT of damage to my self-esteem, body, etc. I take full responsibility for. I remained in a bad situation, and though I believed that he and I could fix things I refused to see and acknowledge (for far too long) that the weight of that burden was planted fully on me. I should've left at the first sign of serious problems.
I should have bailed when the relationship began changing the way I saw myself, how I thought of myself, when it began to depress me and fill my entire world with anxiety. I should have been my own best friend and stood up for ME. Instead, I did everything I possibly could to change into the distorted version he wished me to become. It doesn't take a genius to understand that my acceptance of abuses, be they emotional or physical, would nearly destroy me as a person; I get it NOW, but I didn't get it THEN, not until it was too late and the damage was done.
I had to forgive myself more than the other person, because it was ME who let myself down. I didn't have my own back, and I allowed everything till nearly the end. It wasn't until I had a TIA and ended up in the hospital (very shortly after the last blow up) did I realize to what degree I'd been beaten up inside and how it had shattered me.
In the hospital the doctors asked about my level of stress, had I been dealing with major life changes such as a death in the family, financial hardship, and/or a breakup. That was the first time the lightbulb went on and I began to introspect as I lay in that hospital bed with nothing but the hum of the heater to interfere with what came to me. The realization was harsh, brazen, and shattering in its truth. I had to get out of the relationship; I had to let go; and I had to do it to save my life.
This wasn't a comfortable awareness when it came blazing out of the deep recesses in which unpleasant things go to smolder. But there was nothing I could do, really, but allow it into the light and face what it was, what I'd always known but refused to acknowledge.
So the burning question for most people at this point, after hearing/reading about my experience, the question everyone I knew at the time had is: Why the hell did I stay so long? I stayed because I was in love with him. Isn't that why any of us stay in bad or toxic relationships, because of our feelings and our sometimes misguided hopes that he/she will change?
I wouldn't find out until much later, until it was far too late and the damage was taking over my life and destroying happiness, that the person I fell in love with didn't really exist. If you've read my blogs for a while you've heard me say this, and that's because the realization that I fell in love with a lie is profound and one I struggle with today for obvious reasons: You can't say goodbye to someone who doesn't exist.
The mask slipped and I discovered the truth beneath.
To this day everything about me struggles to reconcile who I thought I loved with who I was actually dealing with.
I believe that this problem of irreconcilable truths, for me, is fanning the flames of what's happening in the current relationship. While I knew this was a possibility there wasn't any reasonable way to prepare for the experience itself. On one hand being protective is necessary, but on the other hand.. always being poised in defense isn't a good idea either.
This emotional struggle could end with closure; something I will never have. I can't say goodbye to someone who never existed, now can I?
Yeah... and therein lies the biggest problem of all. This fight, this struggle permeates day to day life. T's disrespect, whether purposeful or accidental permeates day to day life. Health problems worsen and take over day to day life. There seems to be no end to this....
I've posted enough here for you guys to know where I am at the moment. Dealing with communication and respect issues from T, issues that make themselves known every day and every night without fail. You also know by now that my tolerance for this is extremely thin, verging on non-existent. Notwithstanding innocent goof and human blunders, somewhere in the chaos one has to actually SEE the damage being done. "I" see the damage because I'm a recipient of most of it, but T sits quietly on the river "Denial" and refuses to move. Ok. Whatever.
He doesn't like my bluntness and doesn't want me to say aloud the truth that threatens not only to completely destroy this relationship, but the truth that's destroying my peace of mind, health, and happiness. He's in blissful ignorance, so I don't have any choice other than to say exactly what's on my mind.
When I'm trying to open a discussion, when I need to point out behaviors in someone that TRULY need addressing, I use non-combative phrases. I speak of how I feel, what the harmful behavior is, but I don't point fingers, name-call, label, etc., because that approach causes damage as well. I know how to communicate, as long as people allow me to communicate.
Repeatedly disrespecting me is a huge deal and would be for pretty much anyone. Not allowing anyone to disrespect me was a lesson only recently learned, so I'm still a little awkward with it and finding my balance and strength when approaching the subject. I'm getting there. Now, in the process I've become fairly blunt when I've taken all I can, and all PC is out the window. I speak my mind now while doing my best to preserve the other person's (in this case T) self-esteem. I've no interest in becoming what I most despise so won't allow myself to go there.
T believes that when I point out what he does that hurts, offends, and disrespects me.. that it's a form of disrespect and that I shouldn't say anything at all. But I assure you, that approach NEVER works and is, in fact, quite harmful to relationships and the individuals. If I shove down my feelings, ignore the disrespect, and take the punches in silence... I will eventually resent that person, and that person right now is T. No matter how I try to explain this--he doesn't get it and shows no indication of trying to understand or stop the disrespectful behavior.
Again, as I've said many times before, I'm not trying to make T out as a bad guy or to demonize him. He's NOT a bad guy--he's just blind to the things he does and doesn't do that greatly and adversely affect me in so many ways. I hang in there for the obvious reasons, and I do so because I hold hope very close, hope that he'll see what he's doing so it can be stopped.
I may be a bit foolish for relying on hope this way given my past experiences and hope-filled failures. But there's no reason NOT to hope. In fact, hope is the great buffer of all things, isn't it? Life tends to slip apart when hope is lost.
Damage control: There's been a lot of this with most being unsuccessful. And I'm no stranger to damage control given past relationships that left me holding the weight of fixing everything. One person CANNOT fix a relationship, nor can one person break it. If a relationship is going bad, guaranteed there are TWO people at fault, even if it's the behavior of one and the acceptance of that behavior by the other. It takes two people to break a relationship and two to repair it; an absolute truth.
Sometimes there are victims, yes, but 'most' victims are willing. Meaning, when you have a way out of a bad situation and don't get on board with preparing things, and if you stay and suffer the damaging consequences.. then you've willingly participated in that damage.
As for me, I was a willing victim. I played the martyr in love more times than I like to admit. My role in a past relationship which did a LOT of damage to my self-esteem, body, etc. I take full responsibility for. I remained in a bad situation, and though I believed that he and I could fix things I refused to see and acknowledge (for far too long) that the weight of that burden was planted fully on me. I should've left at the first sign of serious problems.
I should have bailed when the relationship began changing the way I saw myself, how I thought of myself, when it began to depress me and fill my entire world with anxiety. I should have been my own best friend and stood up for ME. Instead, I did everything I possibly could to change into the distorted version he wished me to become. It doesn't take a genius to understand that my acceptance of abuses, be they emotional or physical, would nearly destroy me as a person; I get it NOW, but I didn't get it THEN, not until it was too late and the damage was done.
I had to forgive myself more than the other person, because it was ME who let myself down. I didn't have my own back, and I allowed everything till nearly the end. It wasn't until I had a TIA and ended up in the hospital (very shortly after the last blow up) did I realize to what degree I'd been beaten up inside and how it had shattered me.
In the hospital the doctors asked about my level of stress, had I been dealing with major life changes such as a death in the family, financial hardship, and/or a breakup. That was the first time the lightbulb went on and I began to introspect as I lay in that hospital bed with nothing but the hum of the heater to interfere with what came to me. The realization was harsh, brazen, and shattering in its truth. I had to get out of the relationship; I had to let go; and I had to do it to save my life.
This wasn't a comfortable awareness when it came blazing out of the deep recesses in which unpleasant things go to smolder. But there was nothing I could do, really, but allow it into the light and face what it was, what I'd always known but refused to acknowledge.
So the burning question for most people at this point, after hearing/reading about my experience, the question everyone I knew at the time had is: Why the hell did I stay so long? I stayed because I was in love with him. Isn't that why any of us stay in bad or toxic relationships, because of our feelings and our sometimes misguided hopes that he/she will change?
I wouldn't find out until much later, until it was far too late and the damage was taking over my life and destroying happiness, that the person I fell in love with didn't really exist. If you've read my blogs for a while you've heard me say this, and that's because the realization that I fell in love with a lie is profound and one I struggle with today for obvious reasons: You can't say goodbye to someone who doesn't exist.
The mask slipped and I discovered the truth beneath.
To this day everything about me struggles to reconcile who I thought I loved with who I was actually dealing with.
I believe that this problem of irreconcilable truths, for me, is fanning the flames of what's happening in the current relationship. While I knew this was a possibility there wasn't any reasonable way to prepare for the experience itself. On one hand being protective is necessary, but on the other hand.. always being poised in defense isn't a good idea either.
This emotional struggle could end with closure; something I will never have. I can't say goodbye to someone who never existed, now can I?
Yeah... and therein lies the biggest problem of all. This fight, this struggle permeates day to day life. T's disrespect, whether purposeful or accidental permeates day to day life. Health problems worsen and take over day to day life. There seems to be no end to this....
Wednesday, February 24, 2016
Preceding Sleep There is Music....
This is an amazing song and definitely meant for a great sound system of headphones. I love Blue Stone... though whoever made this video chose a rather unfortunate graphic. Anyway, here is a part of what my night sounds like...............
Preceding Sleep There is Music....
This is an amazing song and definitely meant for a great sound system of headphones. I love Blue Stone... though whoever made this video chose a rather unfortunate graphic. Anyway, here is a part of what my night sounds like...............
Tuesday, February 23, 2016
The Manly Art of Being a Gentleman.
Sadly, I'm often surprised how many guys think they're a gentleman but lack the characteristics to hold that esteemed title. Somewhere along the line behaving like a gentleman, acting, dressing, and thinking like a gentleman lost it's appeal in the male population and was replaced mostly by pseudo-manners and a false bravado that clash to expose the afflicted. Why is this? Well, I wish I knew. What I do know is the effect this has on the female population; at least most of us anyway.
What turns me on the most are 3 very specific traits, and if a man possesses all 3... he's definitely a keeper!
1. He knows what a gentleman is and genuinely exhibits those traits.
2. He's intelligent.
Now, the above list isn't all-inclusive, but my point here is: if a man is a gentleman he's going to possess pretty much all of those traits we women admire and wish for in a man.
Where have all the genuine gentlemen gone?
We could speculate all day long and then some about what makes a man a gentleman, but let's suffice it to say that it's a whole lot more than opening doors. This topic is bigger than you think, because what appears and should be a no-brainer has become complex in today's world due to many factors.
Maybe guys have just lost their way and have no interest in refining themselves to the degree needed. Oh well, I know I for one can spot a true gentleman. Have I steered clear of those who turned out to be nothing close to gentlemen? No. I made huge mistakes all things dating and relationships. I guess for the ones who put on a good show I allowed myself to ignore the small (at first) warning signs until I was in love and completely lost. It's not pretty, but it's true. I gave the benefit of doubt to a couple of guys who honestly didn't deserve it.
I will always believe that there are gentlemen out there, genuine gentleman through and through. There's no way I'll allow myself to believe any other way and will absolutely refuse to allow such non-gentlemanly guys I've dated in the past ruin this belief.
What turns me on the most are 3 very specific traits, and if a man possesses all 3... he's definitely a keeper!
1. He knows what a gentleman is and genuinely exhibits those traits.
2. He's intelligent.
Now, the above list isn't all-inclusive, but my point here is: if a man is a gentleman he's going to possess pretty much all of those traits we women admire and wish for in a man.
Where have all the genuine gentlemen gone?
We could speculate all day long and then some about what makes a man a gentleman, but let's suffice it to say that it's a whole lot more than opening doors. This topic is bigger than you think, because what appears and should be a no-brainer has become complex in today's world due to many factors.
Maybe guys have just lost their way and have no interest in refining themselves to the degree needed. Oh well, I know I for one can spot a true gentleman. Have I steered clear of those who turned out to be nothing close to gentlemen? No. I made huge mistakes all things dating and relationships. I guess for the ones who put on a good show I allowed myself to ignore the small (at first) warning signs until I was in love and completely lost. It's not pretty, but it's true. I gave the benefit of doubt to a couple of guys who honestly didn't deserve it.
I will always believe that there are gentlemen out there, genuine gentleman through and through. There's no way I'll allow myself to believe any other way and will absolutely refuse to allow such non-gentlemanly guys I've dated in the past ruin this belief.
Labels:
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